Gunhild Stordalen: – I am so grateful that I survived – TV 2

For five months ago Gunhild Stordalen (36) diagnosis of diffuse cutaneous systemic sclerosis. Now she tells openly about the tough time, A-magazine.

Rare Disease

OPEN : Gunhild Stordalen lost all his hair due to chemotherapy treatment. This week she visited Skavlan. Photo: NRK.

– It will be like asking how eat an elephant. Man takes a bit of time until one is through, says Stordalen to keep hopes alive through the heavy battle.

Stordalen said she long suppressed disease. Now she goes lines between own thinking and climate issue.

– We do not take over us the environment doctors say. Had we done so, the world would have been different in the morning. Instead it is as if we are told that we have gotten lung cancer but will not remove the tumor. We just continue to smoke. This scares the hell out of me, says Stordalen Aftenposten.

environmentalists initiated EAT in 2013, and later received with scientists, business leaders and politicians on the team. The disease has not done that she is less concerned climate issue, on the contrary.

– I used to think that I had 50 years to do my best to save world. Now I had maybe just two. This may sound strange, but from sheer despair emerged a new project. My life challenge, which gave me new energy and motivation and was the seed of joy: The thought of how much it is actually possible to achieve within a few years.

Lost hair

Stordalen have lost all the hair on his head as a result of the strong chemotherapy. Monday, she “Skavlan” without wig. According Aftenposten she hates them.

– Strange that we can send humans to the moon and transplant organs, but not to make wigs that do not itch and feels like thick woolen hats, she says to the newspaper.

The disease Stordalen is affected by making the skin thick and stiff, and movement restricted. The attacker also bodies such as the digestive tract, lungs, heart and kidneys. In the most serious cases, life expectancy is only a few years.

The disease is very rare. In the US approximately 70 male cases and 270 female cases per 100,000 inhabitants.